Many of you probably know I’m a
nurse and work in healthcare, dialysis in particular. I've been doing this for
quite some time now; seventeen years or so (god I’m old!). Obviously we deal
with a group of patients that aren't long for this world, even coming to us in
the best of health considering their kidney’s no longer function. Most are
there because of diabetes, hypertension, or some genetic condition. Average
life span is about three years. Some patient’s last maybe days, some can live
productive and meaningful lives for twenty plus years. But at some point, they
do pass on.
Over the years you encounter those
patients that you think made a pack with the devil because you have no idea how
they are still breathing (at least they don't glitter so aren't likely to be an immortal
character from the atrocious Twilight series). And then there are those you
expect to live for a pretty long time; they are doing fairly or even very well,
have great family support, and most
likely don’t have the plethora of serious conditions that the more Grim Reaper
teasing patients have. They are the last ones on the list for imminent demise. But
either way… again, doesn't matter, the darkness gathers for us all.
Being what it is, as a nurse or
healthcare professional you hopefully build up that emotional wall or shield
that, as sad as it sounds, enables many of us to deal with the constant death
and soul sucking that this career inevitably brings. You learn skills and
techniques to not get “too close” but still demonstrate compassion and empathy.
Patient’s really don’t need to know that you’d
rather not actually, I guess get attached for lack of a better word, as long as they
feel like you are. Regardless of how
I may personally feel, it’s their belief and their own emotions I care more
about. So I just take myself out of the equation as far “myself” is concerned
and make sure they feel that I’m a caring and involved caregiver.
There are always the patients that
aren't the most pleasurable, I know I’m crazy intolerable bitch-face when I don’t
feel good and that’s usually only a short-term fiasco, but those patients are
out there, especially when they are dealing with a chronic condition that isn't going to get better. You may want to throttle those patients, but you are still required, and hopefully as a nurse
or any caregiver, to treat with dignity and respect and keep your day dreams of
“accidentally” putting them on the colonoscopy schedule, to yourself.
Then there are the fun and
delightful patients that if you are not careful, will ensnare you with their
great attitude and personality and get you “attached”. They make the day more pleasurable
for everyone around them and don’t blame the world or take out their frustrations
on others. They make you really wish you had a magical wand to BOOP! them on the
head with and instantly heal them so they can be off doing better things than
having to be in your facility.
But alas, when dealing with either
type of patient, I have maintained my wall so if and when they do leave this
world, they don’t take a piece of my heart with them.
It’s been years since I've been
affected by a patient’s death or even living issue. And even with a recent
unexpected passing of one of those awesome type patients, I was saddened of
course, the patient was extremely delightful, and I ache for his family, he was
clearly a special man, loved immensely and will be sorely missed by us all. But
still…I take a few moments to say “Okay, well that sucks” and then I move on. I’m
sure my employees think I’m an ice-hearted bitch queen, especially those that
cry at the drop of a hat, but, it works for me. Unfortunately the first thing out
of my mouth as a manger is “well shit, they had great labs all the time”, or “dang
it, they had a fistula”. Whatever it is, I usually get the look of “What the
hell?”, and then I make sure they’re (my staff) okay, but I guess we all deal
with it in our own way.
But there are those rare moments
when those damn patients surprise you, and it’s amazing and humbling. Yay, I’m not an ice-bitch.
Just had a patient take a little ice-pick
to my anemic, shriveled-up heart and give me the most wonderful gift. And I was
lucky enough, at the time and in that instant to feel it happening. One of
those glorious releasing experiences as if you've spent eons trapped hunched over
in a five foot by five foot, pitch-black, windowless, and airless brick and
mortar prison cell. After your sense of self has fled, decades ago, a piercing white
light rips through cracks in the mortar between each brick and whips crisp fresh
air into the room, glaring, chilling, and physically renewing.
One of those moments when you have
one of those “special” patients feel safe and secure enough to reveal some of
the personal demons that are haunting them. And the most heart wrenching part
about it is that it was over what should have been a wonderful turn of events.
This patient had what
anyone would assume as the best news possible for a dialysis patient, the
prospective of an impending kidney transplant. It should have been exciting to
know that they wouldn't have to have dialysis anymore. No coming to the center three
times a week, watching fluid intake, getting stuck with needles and all the
worst parts about having to be on dialysis. He could get a kidney, recover, work
again, and be with his family more, including his young children. Typically this type of news is an occasion to
celebrate and enjoy.
However, for him, this opportunity
created more stress and terror than it did excitement. The unfortunate circumstances
which many dialysis patients find themselves in, is that they are usually
financially strapped, living paycheck to paycheck, if their lucky to have a paycheck
in the first place. Many patients need help from family and friends and whatever
resources are available in the community. This can take a toll on pride, independence
and self-governance. Even though this was a much anticipated event, it’s that
moment in time that we all find ourselves in that can overwhelm the most
precious and exciting news. How will they make it? His wife will have to take
time off work, it’s the holidays and he’ll be laid up trying to recover from surgery
while he’s supposed to be doing whatever he can for his kids and providing in
whatever way, no matter in what limited capacity, for them. But they will be the ones that will have to care
of him. This opportunity is scary. This amazing news and possibility just sent
him reeling, frightened and vulnerable; I get it, in that moment I understand
his tortuous dilemma, and that I’m a complete fuck-tard!
This beautiful person and moment
completely fucked up my chi and made me realize how many of us have no clue how
lucky we are. How fortunate, no matter how much we think our circumstances are
so woe and crappy, most of us, and especially for myself, we really are.
Seriously? I’m a whining, good-for-nothing,
despicable person in that moment. Here I am going about and living in my own
little world thinking I have it so hard. Thoughts of, I don’t feel good, why can’t I
write well, why does my job suck, why is that so expensive, gosh I wish I had more
money, or blah, blah, blah, on it
goes. Really? I have a fucking amazing
life. I have the most incredible husband, family, and friends. The most
important aspects in my life are there and thriving. I’m healthy, happy, and LIVING! This person sitting in front of
me has to face this emotionally, physically, financially, and mind-fucking obstacle
just to try to improve his and his family’s life. He’s drained, tired and
afraid and just gave me the most profound, consciousness-altering gift; a rapid
but lasting shift in perspective. I am fortunate. I’m doing pretty damn well; I
am O.K. my life is O.K. Everything, right here, right now is just fine. There are
worse situations I could be in. I’m not, so why waste time believing I am?
These enlightenments are rare and
precious and unfortunately fleeting. To rest in the middle of nowhere, in a
field of lofty green grass, feel the sun blinding your eyelids, and feel the
warmth of a cool breeze on your skin, for even just a second, is a moment of
balance. That balance has to be found, nurtured, and maintained. To experience that
magic, finding the seed whenever or however, especially in an unexpected
conversation, when your mind and heart open just a crack to let it in, is one of
the most profound life experiences to have, and I’m grateful for this tiny
glimpse of possibilities. Thank you my patient.




